National Center on
Birth Defects and Developmental Disabilities

National Conference, July 26-28, 2004


Conference Lobby Page
On-Demand Archives
Updated Monday, August 16

Work in Progress

Captions The presentations below do not yet include captions for Section 508 compliance. We are transcribing the presentations, and expect to have the the transcripts finished soon. We will send out another email postcard to notify you when the captions are available.
Slides We are trying to acquire the Powerpoint presentations that were not available during the Conference. These will be added as we receive them.
Symposia and Contributed Papers Sessions 18 hours of these sessions were videotaped and are being processed for later addition to this site. This processing is very time-consuming, so these sessions will be added in batches, as they are completed.

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Plenary Presentation Menu
Welcoming Remarks
Moderator:
Barbara R. Holloway, MPH

Deputy Director, National Center on Birth Defects and Developmental Disabilities
Centers for Disease Control and Prevention

26:12
Jennifer L. Howse, PhD
President, March of Dimes

22:27
Donna F. Stroup, PhD
Acting Director, Coordinating Center for Health Promotion
Centers for Disease Control and Prevention

22:35
José F. Cordero, MD, MPH
Director, National Center on Birth Defects and Developmental Disabilities
Centers for Disease Control and Prevention
CDC Distinguished Service Award Presentation
Moderator: Barbara R. Holloway, MPH
Deputy Director, National Center on Birth Defects and Developmental Disabilities
Centers for Disease Control and Prevention

17:37
Presenter: Barbara Alving, MD
Deputy Director, National Center on Birth Defects and Developmental Disabilities
Centers for Disease Control and Prevention
Awardee: Bruce Evatt, MD
Former Director, Division of Hereditary Blood Disorders
National Center on Birth Defects and Develpmental Disabilities
Centers for Disease Control and Prevention
Have We Made Progress In Preventing Fetal Alcohol Syndrome?
Insights and Lessons Learned from a 30-Year History

14:44
Moderator: Kenneth Warren, PHD
Director, Office of Scientific Affairs
National Institute on Alcohol, Abuse, and Alcoholism

29:11
Presenter: Kenneth Lyons Jones
Professor, Pediatrics
University of California, San Diego School of Medicine

25:30
Presenter: Raul Caetano, MD, MPH, PhD
Assistant Dean and Professor
University of Texas School of Public Health

36:12
Presenter: Kathleen T. Mitchell
Program Director and National Spokesperson
National organization on Fetal Alcohol Syndrome

07:39
Question and Answer Panel
Implications for Advances in Genomics to Public Health
Research and Prevention

Moderator:
Muin Khoury, MD, MPH

Director, Office of Genomics and Disease Prevention
Centers for Disease Control and Prevention

42:44
Will Genomics Help Us Navigate the Future?
Presenter:
Alan Guttmacher, MD

Deputy Director, National Human Genome Research Institute
Director, Office of Policy, Communications and Education
National Institutes of Health

33:05
From Biobanks to Public Health?
Presenter:
Bartha Knoppers, MA, LLB, BCL, DLS, PhD

Canada Research Chair in Law and Medicine,
Professor at the Faculté de droit and Senior Researcher
Université de Montréal, Center for Public Law (CRDP)

15:07
Question and Answer Panel
Personal Perspectives on Disability: Experience Across the Lifespan
Moderator:
Margaret Giannini, MD

Director, Office of Disability
Department of Health and Human Services

20:37
Living with a Disability: Challenges and Opportunities
Presenter:
Lex Frieden, MA

Senior Vice President
The Institute for Rehabilitation and Research

34:20
The Realities of the Autism Epidemic: A Parent and Advocate's View
Presenter:
Rick Rollens

Co-Founder, MIND Institute

23:15
Special Guest Speaker: The Honorable Robert J. Dole
Former Senate Majority Leader